Giant Cell Sarcoma of the Uterus

My wife was diagnosed with Giant Cell Sarcoma of the Uterus some time ago. She is being treated for it with chemo and other drugs. She is supposedly one of less than ten people in the world who have been diagnosed with this form of cancer. I have searched the internet many times for information on this disease and have found nothing about it. So, if anyone out there stumbles across this post and knows something about it or knows someone who has it, please respond.